I wanted to give you guys a bit of an update as we have had our next consultant appointment for IVF. The short answer is we are currently in a delay with no time frame. All the tests have back as excellent from the first round, but the downside is that sodden BMI. The long and short of it is, until the BMI comes down to the required number there is no proceeding forwards. End of discussion.
We are annoyed!
We were annoyed at that appointment for the following reasons.
One. The consultant we saw didn’t seem to have any bedside manner and it was all black and white. Now at the end of the day the consultant can close the file over, go home for tea and report back the next day to carry on working. Us on the other hand have the news that we must wait.
Two. Their weight scales and ours at home are 1.5 kg out. Now I get that scales are different but seriously, SERIOUSLY, 1.5kg is actually quite a lot at the end of the day. Again, when I tried to tell the consultant this their response was very matter of fact.
Three. From what we have been told by the nurse at the first appointment we attended to what we have been told by the consultant are two very different scenarios. Now is it too much to ask that when dealing with such a sensitive subject that all parties are on the same page?!
After the appointment
After the appointment we were both left very disappointed. There was anger, there were tears, there was no talking to anyone and so on. That general feeling when that one dream that you had was removed from the table. I am aware it is temporarily removed but at the time it did not feel like that. I have over the last couple of weeks come to terms that it is a delay rather than a straight no, but I still feel pretty angry and upset over the situation.
Why do I feel this?
I feel this way for many different reasons. We have decided to go via the NHS as we are aware that privately it can lead you into tens of thousands of pounds of money and it can sometimes mean re-mortgaging the house. I am also aware that people have set up fundraising pages for IVF. I don’t blame them for doing this but for us it again doesn’t seem like the right way forwards. I am also annoyed as I feel we were treated more like a number than a couple trying to get pregnant. I feel that the consultant may be didn’t know how to deal with a same sex couple. It isn’t as if we can go home and “practice” (although at this point it may be quicker!!!). And finally, I feel that we have put a lot of hard work to get to this point. I get the impression that until you reach the desired criteria numbers that anything else is just not acceptable. I mean it would not cost the NHS anything to say, “fantastic work guys, now you need to keep going, have your tired a, b or c…”. I find the personal approach goes a long way in these things, but I guess that is just me. So, there you go, there are my reasonings.
When I was 20
When I was 20 years old, I had some tests done at the GP. I then had a phone call calling me into the surgery to discuss. The receptionist couldn’t tell me over the phone why but in I went to find out what was happening. I was told that I had PCOS (Polycystic Ovary Syndrome). The likelihood of me becoming a mother was going to be tough to non-existent.
For more information on PCOS (Polycystic Ovary Syndrome) click here to take you through to the NHS website.
Now that was around 15 years ago. Today there are many, many things that can be done to help people with ovary issues. However, that feeling of having a dream of becoming a mother all your life and then it being taken away from you (or delayed when you are working hard) is not a nice one to have. I personally feel that medical staff need to be aware of these matters when dealing with such sensitive situations or information. If you get a doctor with a poor bed side manner, then I feel you are on the pathway to nowhere. As I have said at the end of the day, they get to close the hospital file and go home. You get to go home with a racing head, upset and angry.
The IVF Criteria
Now I am not just saying this as I have not got my way, but I personally feel the IVF criteria is out of date. I managed to rant to Rosie in about an hour with 22 new points I would like to add or change about the current system. I am open to anyone who is in charge of the IVF system in Scotland to meet me for coffee so I can explain. I understand in Scotland we are very lucky that as part of the NHS we get a free go at the procedure but still I feel we need to think about these criteria.
Please note, in England we were turned down from moving forward with IVF as we were not in a borough which supported it. The fact we were a same sex couple was not a sufficient point for them. We were told we either had to move to a different borough or pay for it.
In the meantime
In the meantime, we are researching any other ways to go forwards and any options we may have missed. Going to any information evenings that we can to make sure we are up to speed with any latest developments. We are also making sure our weight keeps coming down and we remain active.
So, we are currently in a delay until our weight comes down and the BMI is the correct one for the IVF criteria. Only at this point can we begin more rounds of tests and eventually get into the service. We have estimated it could be at least another year before the actual IVF begins and possibly another 2-3 years before we can bring a child home and call it our own.
My advice to anyone else going through something similar. Speak to your friends, family, loved ones. Don’t keep it bottled up. Be active and look after yourself. As my Dad often says “what is for you will not pass you by”.